BEINEINU NEWS & NOTES

February 4, 2016

INTERNATIONAL

Online Sibling Support---Sibs For Us is a new online sibling support group. A note from Ellie, their founder:

This is a group for siblings of kids with special needs. We know it can sometimes be a struggle growing up with siblings with SN. But we also know that it can be incredibly inspiring as well.

 

Speaking to a friend recently, demonstrating with my words that I understood her, I could see a visible difference in her demeanor, just knowing that someone knew what she was talking about. Growing up with a sibling with special needs has its share of challenges and joy. We want you to have a place to share it, knowing that others, although completely different to you, have this unique thread tying you together.

Sibsforus aims to give siblings of kids with Special Needs space to express their opinions, share their feelings and provide positivity for others too!

To join, simply email This email address is being protected from spambots. You need JavaScript enabled to view it.  with your name and email address. You will be asked to post a short introduction to become part of the moderated group. You can receive emails and correspond with other siblings, by replying to individuals or to all who belong to the group. 

USA

Crohn’s Research---Shapiro+Raj, a medical market research firm, wants to talk with individuals with Crohn’s Disease as part of a paid, 60-minute phone with internet discussion aimed at facilitating understanding of your journey with Crohn’s Disease. Participation is confidential, for research purposes ONLY. It is not related with sales. They follow the deidentification standard under HIPAA, as well as other security and privacy measures.


This is NOT a clinical trial. Participation will not involve any change to your treatment regimen. And they are specifically looking for Crohn’s patients who have never used a Biologic. There is a considerable honorarium included for completion of a study, a payment of $125.00.


Slots available from Tuesday, February 2 to Thursday February 4. To see if you qualify and to set up a convenient time, please call 312-321-8102. Reference project #683-909. Or visit: http://bit.ly/1P0deUv

Autism Sails Cruise---Royal Caribbean and Cruise One team up to present "Autism Sails" cruise aboard the beautiful Brilliance of the Seas. February 18 - 22, 2016 sailing from Tampa. Royal Caribbean offers an autism friendly initiative for families living with autism and other developmental disabilities. This includes sensory friendly films and toys, dietary menu options, and overall autism friendly training for Adventure Ocean staff and more. Royal Caribbean offers a wide range of autism friendly products and services, and they include:

  • Special dietary accommodations including gluten-free and dairy-free
  • Adventure Ocean flexible grouping ability for children 3 to 11 years old
  • Adventure Ocean toilet-trained policy exception
  • Pagers/phones for children in the Adventure Ocean program while signed into our care
  • Priority check-in, boarding and departure

For more information see http://communities.autismspeaks.org/site/apps/nlnet/content3.aspx?c=ihLPK1PDLoF&b=7524027&ct=13188981&notoc=1

Genetic Testing---Yeshiva University in partnership with JScreen will be holding a genetic screening on Sunday February 14th from 2:00-6:00 pm. The test scans for more than 100 diseases using saliva samples rather than blood for testing. To pre-register, go to www.JScreen.org to request a kit. Select YU/Stern from the “how did you hear about JScreen” menu. Enter insurance information on step 2. On step 4 enter the coupon code YU2015 and click apply to receive the subsidized $25 rate. Kits can be picked up at YU’s Belfer Hall. Do not eat, drink, or smoke for 30 minutes before testing. For more information contact Rabbi Robert Shur at 212-960-5400 ext 5313, or see www.YUmedicalethics.com.

Special Needs Babysitting Course---A five week course is being given on February 7th - March 13th 2016 at the  JCC of Central NJ, Scotch Plains, NJ.  During this course, teens will be trained by a special needs professional through workshops, videos, and meetings. Students will be certified in CPR and First Aid, with additional topics including: disability awareness, rights and responsibilities, child development and behavioral challenges, communicating with the child with special needs, modifying games/activities, handling emergencies, and more.  A list of teens that have completed the course can then be shared with families in the community seeking childcare.  FOR MORE INFORMATION OR TO REGISTER  contact Becca at (973) 929-3129 or This email address is being protected from spambots. You need JavaScript enabled to view it.