BEINEINU NEWS & NOTES
November 13, 2012
INTERNATIONAL
Urgent Notice—Recent events have shown how important it is to keep a copy of your child’s medical records in an easily accessible place. Even better—keep a second copy of the most important information in a different location! Many people were displaced during Hurricane Sandy with no list of medications or any other important medical records. NYU Medical Center evacuated all patients WITHOUT ANY RECORDS because all data on their computer system was lost! Patients were sent to other hospitals with no records or lists of medications whatsoever! Even many doctor’s offices and clinics lost everything during the storm. Having your own copy of medical records can help avoid serious errors and possibly even save your child’s life.
Parent match—Joint Replacement Surgery—An 8 year old boy in Israel with Cerebral Palsy was advised to undergo joint replacement surgery. The parents would like to speak with another family experienced with this procedure. Contact Merav, 972-052-591-3680. If you do not speak Hebrew and need a translator, contact
Parent Match—West Syndrome—Parents of a 14 month old child in Israel diagnosed with West Syndrome would like to connect to other parents experienced with treatment options. Contact Renana and Natan,
USA
NY & NJ Events—Due to Hurricane Sandy, many scheduled events listed on our Calendar have been cancelled, rescheduled, or moved to other locations. Please call ahead to make sure the event is still on.
Building Blocks Wants To Hear From You—Building Blocks, a semi-yearly special needs magazine containing interesting articles and many resource listings wants to hear from you. They want to add more of what YOU would like to see. If you like to write or have ideas for new features, please contact
Sandy-Related Stuttering Issues—The Jewish Stuttering Association has informed us that they have received an upsurge of calls related to children and teens who began stuttering after the trauma of Hurricane Sandy. For the benefit of anyone who needs it, we have attached a copy of JSA’s Resource Guide which provides helpful information related to stuttering issues.
Speech-Language Pathologists Needed—The Jewish Stuttering Association is asking for speech therapists to volunteer to perform free evaluations for affected hurricane survivors. They will be compiling a list of those who are willing to volunteer their expertise and time, and will then be in touch with the appropriate organizations who are in the forefront of the recovery effort to get this info directly to the people in need. Contact
ISRAEL
Parent Match—PDD in Sharon/Emek Chafer area—Family with high functioning, mainstreamed child with PDD would like to connect with similar parents in Sharon/Emek Chafer area. Contact
Parent Match—PDD in Hod HaSharon Area—Parents of a 7th grade child with PDD in a regular school (small class) would like to speak to similar families in the Hod Hasharon area. Contact Gal -