BEINEINU NEWS & NOTES

October 3, 2013

INTERNATIONAL

Parenting Simply Webinar Series—Tree of Knowledge and Parenting Simply invite you to join in their series of 6 live parenting webinars presented by Adina Soclof. They will run Monday evenings beginning October 7, 2013 from 9:00-10:00 pm EST. For more information and to register, see their website at  http://www.treeofknowledge.us/workshops/?action=evregister&event_id=3

USA

Autism Study—The research team at the Seaver Autism Center at Mount Sinai is conducting a research study for children who might have an autism spectrum disorder or developmental delay. The goal of this study is to identify a screening tool that uses gene expression patterns to help predict an autism diagnosis. Participants will receive a diagnostic evaluation by trained clinicians. There are no treatments involved in this study.

Individuals may be eligible if they are between 1 ½ -4 years old and have a possible developmental disorder. For more information call 212-241-0961 or This email address is being protected from spambots. You need JavaScript enabled to view it., www.seavercenter.org.

Autism Study--Towson University’s Hussman Center for Adults with Autism is conducting a research study to explore the effect of active videogame systems on physical activity and enjoyment in young adults aged 18-25 on the Autism Spectrum. Participants will attend 8 sessions at the center, playing active videogames with and without a partner while wearing a heart rate monitor (chest strap) and accelerometer (waist band), as well as performing a balance and coordination test. Sessions will be videotaped. Compensation is $80 gift card for completing all 8 sessions. Contact Amanda Foran at This email address is being protected from spambots. You need JavaScript enabled to view it. or (360) 259-0089.

Neurophysiology Research--Helen Hayes Hospital is recruiting volunteers to participate in rehabilitation neurophysiology research studies. Participation in a study requires approximately three sessions per week for two to three months, followed by four to eight sessions over another two to three months. Each session will last approximately 90 minutes and participants will be paid $15 per session.

For additional information on neurophysiology research studies and how to join these studies, contact Lauren Verlizzo at This email address is being protected from spambots. You need JavaScript enabled to view it. OR 845-786-4473. For information on Translational Neurological Research in general, contact Laura Tenteromano, RN, CCRC, at  This email address is being protected from spambots. You need JavaScript enabled to view it. OR 845-786-4854.

Down Syndrome Registry—The DS Connect Down Syndrome Registry is being launched by NIH’s Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) in an effort to connect individuals who have Down syndrome with researchers who are studying DS. This registry will allow family members to anonymously compare their health experiences with others. Families can also find out about research, and can chose to participate in research studies if they desire.

There is a particular need for older individuals with Down syndrome to join the registry, as people with DS are living longer than they ever have in the past, and information will help maintain health and quality of life.

For more information, see https://dsconnect.nih.gov/www.DSconnect.org

Illinois Residents—If you have received a PUNS selection letter from the DOH or are interested in a Kosher home for your son or daughter with a developmental disability, contact Libenu at 847.982.0340  ext. 227, This email address is being protected from spambots. You need JavaScript enabled to view it.

www.libenufoundation.org

ISRAEL

Parent Coaching for ADD/ADHD—Kesher is offering 10 one-hour long sessions, at their office in Jerusalem, 4 Yad Harutzim St., Talpiot. Exact day and hour will be set between you and Daliah Mandler, who is an authorized personal coach specializing in coaching parents of children with ADD/ADHD

Cost: 75 ILS per session (entire sum to be paid by second session) To make an appointment: KESHER Jersuaelm, 02-623-6116, This email address is being protected from spambots. You need JavaScript enabled to view it.

Questions and Comments? Daliah Mandler 054-631-2558

Dog Workshop—Kesher is offering dog workshops led by Ofri Shochet (www.kelev.net). This is your chance to offer your child quality time and empowerment and to integrate your dog into your home. Workshops are for Parent + child with special need and Parent + sibling of child with special needs. In both cases dog must be brought along. 20 sessions, Sundays 5-6 pm, starting on Oct. 6, 2013–10–03 At Park Dania (in Ramat Sharet). Cost: 30 ILS per session (two payments of 300 ILS each). First introductory session free of charge! To register contact KESHER Jerusalem 02-623-6116, This email address is being protected from spambots. You need JavaScript enabled to view it.

SHEMESH Program Activities--SHEMESH is a program for family rehabilitation and enrichment for families of children with special needs. In one part of the program, experienced parents accompany "new" parents in the beginning of their journey.  Other services include group training, developing parent leadership, as well as creating dialogue between parents and professionals.

You are invited to join SHEMESH's free October activities:

Rosh HaAyin:

"When I listen to you I hear myself" – a listening circle – for communication from the heart, healing and growth

A workshop of 5 sessions, led by Efrat Cohen-Gil and Ronen Arbel (graduates of the Uriel Center)

Tuesdays, every other week from 8-10 PM, starting on Oct. 1 2013, at the Avivit Center, Rosh HaAyain.

For more info and to register: Naomi – 052-3682358  This email address is being protected from spambots. You need JavaScript enabled to view it.

Elad

Parents Accompanying Parents – training course

For mothers who wish to accompany "new" mothers in the beginning fo their journey, raising a child with special needs.

15 sessions, every Tuesday 8-10 PM, starting on Oct. 15, in Elad

Led by Miri Weiss (initiator of the SHEMESH program)

For more info and to register: Naomi – 052-3682358  This email address is being protected from spambots. You need JavaScript enabled to view it.

Rehovot:

"Help – I'm going out of my mind!" – a workshop on integrating the child into the family by Debby Elnatan, initiator of the SHEMESH program.

Topics:

Play, fun and leisure, integrating the child into the family and finding the balance within the family through volunteers.

3 sessions, every other week on Wednesdays, starting on Oct. 2, 2013. 8-10 PM

For parents of children with special needs – starting on Oct 9

Continuation of the group for Haredi mothers – starting on Oct 2

Sessions will take place at the social services dept, 8 haNeviim St., Rehovot

For info and to register: Tamar – 0525531211 This email address is being protected from spambots. You need JavaScript enabled to view it.