BEINEINU NEWS & NOTES
July 18, 2013
INTERNATIONAL
Neurofibromatosis—The Children’s Tumor Foundation’s online NF registry helps match NF patients with clinical trials and research studies that may help them. This past April, the registry was able to inform 50 patients about a tibial bowing study for which they were eligible. If you are dealing with any form of NF, you can join the NF registry by contacting Pamela Knight at 212-344-6633 ext 8555, or www.nfregistry.org.
USA
Home Modification Information—We have received a printout of the A.S.S.I.S.T. powerpoint presentation produced by Frangeli consulting. It discusses many suggestions for modifying homes to make them wheelchair accessible. To have us email a copy to you, contact
New York City Adaptive Summer Sports Programs:
The City Parks Foundation offers adaptive track and field lessons, Monday-Thursday from 9:30am-noon, July 1 till August 8 at various parks and recreation centers across the city. For more information on the exact locations, please go to: www.cityparksfoundation.org<http://cityparksfoundation.org>. You can also contact Camp Director George Febles at 646-554-4453 or by email at:
New York City Parks Department offers adaptive aquatics swim lessons during the months of July and August at various locations. For more information, please contact Aquatics Director John Hutchins at: 718-760-6969 or by email at:
New York Parks Department in conjunction with Wheelchair Sport Federation offers the following throughout the summer:
Indoor Wheelchair Soccer on Mondays from 7-9 pm at Roy Wilkens Park located at Baisley Blvd and 177th Street in St. Albans, Queens, NY
Wheelchair Softball on Tuesday from 5:30-7:30 pm at Bulova Park 25th Ave and 76th Street in East Elmhurst, Queens, NY
Wheelchair Football on Wednesdays from 7-9 pm being held at Forest Park located at Woodhaven Blvd and Myrtle Ave in Forest Hills, Queens, NY.
Wheelchair Basketball on Thursdays from 7:30-9:30 pm at the Al Oerter Recreation Center located at 131-40 Fowler Ave in Flushing, Queens NY.
Parks Department Contacts:
Dave Deas 347-208-2113
Chris Noel 646-632-7344
ISRAEL
Medical Assistants (saya'ot refuiyot)—Beginning July 16, 2013, the Misrad Hachinuch has ruled that children that are eligible for a medical assistant to care for their medical needs in school (regular class) may continue using a medical assistant during summer camp.