BEINEINU NEWS & NOTES

January 3, 2013

MAZEL TOV

We are also announcing the beginning of the new MAZEL TOV section of Beineinu’s News & Notes, where we will be glad to share YOUR special child’s Simcha with the entire Beineinu family. Let us know of your child’s milestone—be it a Siyum, graduation, Bar Mitzvah, engagement, wedding—or even a major accomplishment like a first word clearly spoken or first step taken. Sharing your Simcha will give hope to others sharing your diagnosis.

As families dealing with special needs, we know how much effort, tears, and prayers went into each milestone.  Your hope is our hope! Your Simcha is our Simcha! Let us share the joy together! Send your Mazel Tov announcements to This email address is being protected from spambots. You need JavaScript enabled to view it.. We will post it for everyone to share.

INTERNATIONAL

Zichron Yehuda Equipment Exchange—We are currently updating Beineinu’s Equipment Exchange lists. If you have any equipment or supplies that you want to give away or if there is something that you need, please contact This email address is being protected from spambots. You need JavaScript enabled to view it..

Guide for Verbal Dyspraxia--The guide from this site - http://www.apraxia-kids.org   -serves as an introductory guide for parents of children who were diagnosed with verbal dyspraxia.  In the guide you will be able to read about the hottest topics and find answers for the many questions asked by parents and family members of children with verbal dyspraxia.

Click here for the guide

USA

Treadmill needed—A special ed school in Williamsburgh is looking for the donation of a treadmill for their therapy program. They will pick up in the NY-NJ area. If you know of one in good working condition that is being given away, please contact This email address is being protected from spambots. You need JavaScript enabled to view it..

Priority Setting Meeting—Attention Rockland County NY parents and service providers: New monies will soon become available for family support services through the OPWDD. Suggestions are being taken as to how to best use those funds. A meeting will be held on January 8 at 10:00 am at the Jesse Kaplan School to discuss this issue. If you cannot attend, contact Janis
Levitt at 845-947-6335 This email address is being protected from spambots. You need JavaScript enabled to view it. with your suggestions.

C-pap Machine Needed—A family is looking for the donation of a bipap machine, which is not covered by their insurance. If you have one in working order that you do not need or can sponsor one, please contact This email address is being protected from spambots. You need JavaScript enabled to view it..

ISRAEL

Jerusalem Tours—There will be 6 exciting tours throughout the city, geared for children with special needs and their families: siblings, parents and grandparents. The first tour will take place on Tuesday, 18 Shvat, Jan. 29, 2013. Tours will take place once a month, on Tuesdays, starting at 4:30 PM (may change occasionally). COST of entire tour course: 140 nis per family. Limited to 4 family members per tour. The tours are accessible for children with cognitive/developmental and/or physical disabilities, and their families.

For information - http://horimbekesher.co.il/Article/?ID=3362

Simcha Layeled--Simcha Layeled assists children who are ill, as well as their families, while accompanying the child through hospitalizations and rehabilitation, and building a social setting for the children. They help children with chronic and genetic diseases, or children who are undergoing prolonged rehabilitation, and who are not cognitively affected. The Personal Friend program provides children and teens who are ill, a social setting which both supports and accompanies them. Each of the members is paired with a volunteer who meets him/her weekly.  The meetings include going out to spend time once every three weeks, and joining the organization's activities. The Jerusalem branch is accepting a limited number of new members for the older group (9th-12th grades). Contact: Hodaya Israeli at This email address is being protected from spambots. You need JavaScript enabled to view it.. You can see the organizations' activities in their website:

Activities Database-- Gingim is a large and comprehensive database of activities, which were developed for the use of individuals with special needs: www.gingim.net.  Want to try it? Send them an email and they will give you a full week FREE OF CHARGE! This email address is being protected from spambots. You need JavaScript enabled to view it.

Parent Match Needed--We have a 6.5 year old daughter with ESES and epilepsy. We'd love to hear more about this disease, since all the medications my daughter has received until now do not help (doctor said her body's resilient to them and it only causes regression – which we do see – and the older the child gets, if we do not manage to find something that helps her, the symptoms will not be easy).I would like to talk to Hebrew speaking parents of children with this problem, and parents whose children are past adolescence so we can know what the symptoms are. Yaffit Ankari –