Hermansky-Pudlak Syndrome
The Hermansky-Pudlak Syndrome Network
800-789-9477
The Hermansky-Pudlak Syndrome Network is a volunteer self help support group for people and families dealing with Hermansky-Pudlak Syndrome (HPS) and related disorders such as Chediak Higashi Syndrome. Services include information and support, a client registry to facilitate networking and research, and a yearly family conference.