DANDY WALKER SYNDROME
Dandy-Walker Alliance
877-326-3992
10325 Kensington Pkwy
Suite 384
Kensington, MD 20895
The Dandy-Walker Alliance, Inc. is a non-profit, voluntary organization committed to educational and informational activities, programs and publications. The Dandy-Walker Alliance promotes non-partisan research and events to increase public awareness of Dandy-Walker. They also support all efforts to determine the cause(s) of, find the cure for and to ameliorate the effects of Dandy-Walker. Dandy-Walker malformation (DWM) is a brain malformation that occurs during embryonic development of the cerebellum and 4th ventricle. The symptoms of Dandy Walker syndrome typically include developmental delay, low tone (hypotonia) or later high tone (spasticity), poor coordination and balance (ataxia), and sometimes enlarged head circumference and increased pressure within the skull due to hydrocephalus.
Dandy-Walker Syndrome Network
612-423-4008
5030 142nd Path West
Apple Valley, MN 55124 USA
The Dandy-Walker Syndrome Network (DWSN) is a non-profit organization that provides information and support to individuals and family members affected by Dandy-Walker Syndrome and the physicians who treat them. Dandy-Walker Syndrome is a rare malformation of the brain that is present at birth. Established in 1996, DWSN offers family networking services and a variety of materials including studies that explain the effects of Dandy Walker Syndrome.
Dandy Walker Syndrome Online Support Groups
https://groups.yahoo.com/neo/groups/dandy-walker/info
An online support group for families affected by Dandy-Walker Syndrome
http://groups.yahoo.com/group/dandywalker
An online support group for patients and families affected by Dandy-Walker Syndrome. (This group is les active than the above group)