SPINAL CORD ORGANIZATIONS
United Spinal Association
Tel: 800-404-2898
Fax: 718-803-0414
Membership is free and open to any individual with a spinal cord injury or disorder. These conditions include traumatic spinal cord injury, congenital spinal cord disorders such as spina bifida and spinal cord diseases such as multiple sclerosis, amyotrophic lateral sclerosis (Lou Gherig’s Disease), poliomyelitis and syringomyelia.
Benefits include:
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Expert advice on negotiation the maze of Federal State and local entitlement programs and free representation with VA social security, Medicare and Medicaid claim disputes or appeals
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ABLE to travel—full service travel agency specializing in accessible accommodations and transportation alternatives across time USA and around the world (http://www.abletotravl.org/ )
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Evaluations and comprehensive information on all makes and models of wheelchairs and adaptive equipment (http://www.usatechguide.org/ )
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Advocacy on civil right issues
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Adaptive sports and recreation
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Monthly magazine “Action” with info on disability news, research initiatives, etc
Ankylosing Spondylitis Association
800-777-8189
Families Spinal Muscular Atrophy
800-886-1762
Scoliosis Associaton
800-800-0669
Spinal Bifida Association of America
800-621-3141
United Leukodystrophy Foundation
800-728-5483
National Spinal Cord Injury Association
800-962-9629, 301-214-4006
6701 Democracy Blvd
Suite 300-9
Bethesda, MD 20817
An organization that provides a wealth of resources and services to assist spinal cord injury patients and their families in all aspects of their lives. Free registration at http://www.spinalcord.org/forms/ind-membership.html A free monthly New Mobility Magazine is provided to all members.
National Scoliosis Foundation
800-673-6922