SKIN DISORDERS ORGANIZATIONS
National Institute of Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
877-226-4267, 301-495-4484 (V), 301-565-2966 (TTY)
1 Ams Circle
Bethesda, MD 20892-3675
Foundation for Ichthyosis and Related Skin Types
800-545-3286, 215-631-1411
1601 Valley Forge Rd
Lansdale, PA 19446