MSUD (Maple Syrup Urine Disease)
MSUD Family Support Group
From their website:
The MSUD Family Support Group is a non-profit 501 (c)(3) organization for those with MSUD and their families and includes health-care professionals and others interested in MSUD. Parent interest in support and information prompted the first MSUD Symposium for families and professionals in 1982. It was at this first Symposium that the families discussed the need for an organized support group. Symposiums are held biennially and are usually planned by the families with the help and support of their medical clinics...
Sandy Bulcher, Director
Powell, Ohio
614-389-2739