Mucolipidosis IV Organizations

Mucolipidosis IV Foundation

http://www.ml4.org/

From their website:

The ML4 Foundation is a non-profit corporation founded by families whose lives have been affected by ML4.
 

The mission of the Foundation is to fund, promote, and support medical research dedicated to developing effective treatments and ultimately, curing ML4 by

• Providing critical financial support to researchers to pursue scientific endeavors related to ML4;
• Linking individuals with ML4 with researchers for clinical studies;
• Encouraging established researchers to stimulate interest in ML4 at high academic levels;
• Sponsoring symposia and other programs concerning Ml4 research to inspire cooperation, communication, and collaboration among scientific researchers, academic institutions, charitable organizations, governmental agencies, and concerned individuals;
• Raise awareness in the medical community to decrease the undiagnosed and misdiagnosed cases of ML4, and
• Increase education in the Jewish community, and the general community, as to the availability of the carrier and prenatal screening tests.

Contact: