CYSTIC FIBROSIS ORGANIZATIONS
Cystic Fibrosis Foundation
800-344-4823, 301-951-4422
6931 Arlington Rd
Bethesda, MD 20814
Child Life Society
718-853-7123
A Jewish organization helping children and adults with cystic fibrosis. They help purchase medical equipment, special vitamins and supplements, and assist the family with everyday expenses.
Their Lifeshine Respite Homes in the tropical atmosphere of Key West, Florida provide a 10 day stay that gives relief of medical symptoms for months.