CRANIOFACIAL ORGANIZATIONS
Cleft Palate Foundation
800-242-5338
Children’s Craniofacial Association
800-535-3643, 214-570-9099
13140 Coit Rd
Suite 307
Dallas, TX 75240
Faces: National Association for the Craniofacial Handicapped
800-332-2373, 423-266-1632
PO Box 11082
Chattanooga, TN 37401
National Foundation for Facial Reconstruction
212-263-6656
Aboutface USA
888-486-1209
Craniofacial Foundation of America
800-418-3223, 423-778-9192
975 East 3rd St
Box 269
Chattanooga, TN 37403
Foundation for Nager and Miller Syndromes
800-507-3667
Forward Face
212-684-5860
317 East 34th St
Suite 901A
New York, NY 10016
For children with Craniofacial Conditions
Let’s Face It USA
360-676-7325
PO Box 29972
Bellingham, WA 98228-1972
Information and Support on facial differences
My Face
212-263-6656
333 East 30th Street, Lobby Unit
New York, NY 10016
myFace, formerly the National Foundation for Facial Reconstruction, was founded to address the all-too-visible plight of those with facial deformity such as facial asymmetry, a missing ear, a jaw deformity, or a defect of the skull, nerves or facial bones. myFace assures them access to the comprehensive and highly personalized team care at the Institute of Reconstructive Plastic Surgery (IRPS) at NYU Langone Medical Center. The IRPS provides integrative, highly specialized and personalized team care to all those who request treatment, regardless of the type or severity of the anomaly, the length of treatment, or the family’s ability to afford care.
The Institute of Reconstructive Plastic Surgery (IRPS) is housed in a state-of-the-art facility that contains 15 Centers of Excellence, faculty clinical offices and full-service outpatient operating rooms. Every member of the attending staff holds NYU School of Medicine academic appointments. The Institute conducts one of the largest plastic surgery educational programs in the world, and its research program has made major contributions in the areas of transplantation, wound healing, craniofacial biology, computer graphics and distraction osteogenesis. (For more information on IRPS, see www.plastic-surgery.med.nyu.edu.
myFace established and maintains The Newman Family Support Center, the most comprehensive psychosocial team in any U.S. craniofacial center. The team at Newman includes a Social Worker, Clinical Psychologist, Geneticist, Pediatric Nurse Practitioner, Speech Pathologist, Nutritionist, and Family Program Coordinator. The team provides counseling for genetic, psychiatric, behavioral, social, pre-natal and post-natal, speech, mentoring, resource and medical issues.
myFace also hosts networking, therapeutic and educational programs for patients and their families. Finally, they provide an apartment for out-of-town families while their child is undergoing surgery and treatment, as well as complimentary round trip tickets on Southwest Airlines.