PREMATURE BIRTH (PREEMIE) SUPPORT
Please note—The information listed here comes from many sources. Please check individual groups for suitability for your family’s needs.
WeeCare
732-813-3299
A Lakewood & Brooklyn based support system for mothers of preemies and micro-preemies all over the USA. Volunteers who are also mothers of preemies will answer the hotline and provide support, advice, and answers. Weecare offers rides, meals, help at home, and activities for siblings. A neonatologist is on call to provide information and assistance.
The ROP Foundation’s PreemieCare Spotlight Community Support Group
contact: Candi Sturgeon
(305) 562-3642
The ROP (Retinopathy of Prematurity) Foundation, strives to help parents of children born to soon to be able to make choices about their infant or child’s future. Through their website, parents are able to get the answers they have been looking for. The foundation was founded by people who have a personal experience with Retinopathy of Prematurity in conjunction with a group of retina surgeons. The site offers resources, information, live chats, and much more.
NICU Parent Support Site
http://www.nicuparentsupport.org/
Information, Resources & Encouragement to Reassure and Support NICU Parents
You can get information that NICU parents and NICU Families may find helpful, be reassured with weekly encouraging messages and keep updated on our progress on the NICU Parent Support site and eBook. The site offers a NICU Parent Support Blog and NICU Parent Support email list.
Your Preemie
At Your Preemie we are parents of preemies, and because we understand, we’ve created this parenting magazine and accompanying website for you as you journey through the unique joys and unique challenges of your child’s first five years.
PMB 264
321 High School Road
Bainbridge Island, WA 98110
WebMD Preemie Support Group
Your baby was born premature. Come here to share your fears, concerns, and joy, and find support from other preemie parents as you navigate the challenges of your little one’s first amazing year of life.
Raising Them: Parents of Preemies
If you are currently going through this difficult time, or if you have in the past, this is a group where you can share this incredible experience, or ask questions to other parents who have been through it as well.
Premature-Infant.com
A Resource for preemie parents and healthcare providers.
Premature Baby - Premature Child
Founded in 1997, this group offers support for parents of premature babies that are age 4+ years old, for any of their special needs (e.g. mental, physical, emotional or learning disability.) They also provide support, discussion listserv, prematurity forums, advocacy and educational links.
Premature Babies Online Support Group
A community of patients, family members and friends dedicated to dealing with Premature Babies, together.
Premature Babies Online Support Group
A community of patients, family members and friends dedicated to dealing with Premature Babies, together.
Preemie Twins
Resources for both parents of multiples and/or parents of premature infants
Preemie.Info
A place to share stories and photos about your preemie.
Preemie Parenting
Preemie Parenting is a place created for parents and loved ones of premature infants, and women experiencing a high risk or complicated pregnancy. This site is devoted to supplying you with information, support and resources.
Preemie Miracles
Miracle Preemies is a list for parents of premature babies and also moms-to-be who may be at risk for delivering early and may have questions for mother's of premature infants and children. This list offers support to parents of children born prematurely and the friendship of people with things in common.
PreemieMoms
Preemie Moms is a place of support and encouragement for mothers (biological and adopted) of premature children. The preemies can be of any age, from 0 to adult.
Preemie Child
Preemie Child is a mailing list, founded in 1997, provides support and information on the long term impacts of prematurity for parents of school age preemies. Parents of children 4 years or older who were born prematurely are welcome.
Preemie Chat
Preemie Chat is a Yahoo email group that serves as a gathering place to meet other preemie parents and friends of our precious preemies.
Preemie.org
Preemies.Org was established to help parents of premature infants find other parents using various Internet resources such as the Preemie Chat room.
Email:
Post Preemie Pregnancy Group
A list for those considering another pregnancy after having a premature birth at 34 weeks or less.
Newborns in Need
Newborns in Need, Inc. (NIN) is a 501(c)3 charity organized to take care of sick and needy babies and their families; and in cases of crisis, to help where help is needed.
Local chapters in many states. See state listings below
Phyllis Rhoads
3776 SW Savory Dr.
Palm City, FL 34990
E-mail:
Moms with Preemies/Miracle Babies
Welcome all Parents of Preemies/ Miracle babies...we look forward to seeing your families. Feel free to introduce yourselves, and join on it the message boards.
Miracle Babies
The Miraclebabies Foundation is a non-profit organization which provides peer support for families experiencing or who may expect a premature birth or infants with special needs.
Miraclebabies/Abbyloopers Foundation
P.O. BOX 41008
Des Moines, IA 50311-3100
Inspire Preemie Support Group
Inspire connects patients, families, friends and caregivers for support and inspiration.
Inspire
PO Box 1438
Princeton, NJ 08540
Phone: (800) 945-0381 toll free
Fax: (202) 478-0377
Dad's of Premature Infants
This Yahoo email group is for dads of premature infants to communicate, discuss topics and most of all if needed support each other.
All-In-A-Preemies-Day
This Yahoo email group is about raising children who just happen to be premature. Not in judgment, since all parenting styles differ, but offering ideas to each other, dealing with the initial hurdles of the life or death struggle, offering support for parents of special needs children, sharing the joys of our children's accomplishments and still allowing our children to be people we love and not a bundle of labels.
All4Preemies
All4Preemies is a yahoo email group for parents or caregivers of preemies to discuss their concerns and share tips for taking care of these special little ones, also discusses clothing needs and special ways to make these little ones grow.
Alexis Foundation
Our mission is to assist parents, healthcare professionals and the public in providing the best possible care for premature infants and children.
P.O. Box 1126
Birmingham, MI 48012-1126
Phone: (248) 543-4169
Email:
Preemie-L
Contact:
Anne Casey at
An international online support group for parents of babies born 6 or more weeks premature. The Preemie-L Discussion Forum supports families of premature babies while the babies are in hospital and as they grow up. Discussions are focused on the experience of prematurity for family, the babies themselves, and friends.
CarePages
PreemieCare and MOST have both partnered with CarePages, a service that provides private personalized web pages for families with loved ones who are hospitalized or undergoing treatment for a medical condition. This service offers a way for expectant families on bedrest, families with babies in the NICU, or families with children or parents facing ongoing health concerns to efficiently and privately communicate updates with family and friends as well as receive message of support.
For more information, visit the PreemieCare CarePages or MOST CarePages web page today.
CarePages also has an entire Preemie Resource Center and Preemie Parent Forum, where families can go for information and support.
The Preemie Community Forum
The online Preemie Community Forum gives the parents of children born prematurely a safe, trusted environment in which to share and support one another through their individual journeys and experiences. Parents have the opportunity to easily create online journals reflecting their experiences raising their children — from the NICU through to the school years. Parents create and participate in discussions about medical, lifestyle, and emotional issues surrounding the care and raising of premature children. And, most important of all, they can find and connect directly with others who are going through similar experiences.
Parenting Preemies
contact: Rachel
973-835-9377
Parenting Preemies is a support group for parents of premature babies and children: NICU and post-NICU. We also have support for many of our members who have lost a preemies(s) or are currently parenting multiples.