Leigh Syndrome Organizations

LEIGH SYNDROME ORGANIZATIONS

MitoAction

PO Box 51474 Boston, MA 02205

888-648-6228

1-888-MITO-411 (648-6411) for support line

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http://www.mitoaction.org

People Against Leigh Syndrome (PALS)

Lori Martin, Director

Houston, TX

713-863-0485

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http://peopleagainstleighs.org/

United Mitochondrial Disease Foundation

8085 Saltsburg Road, Suite 201

Pittsburgh, PA 15239

888-317-8633 412-793-8077

Fax: 412-793-6477

This email address is being protected from spambots. You need JavaScript enabled to view it. http://www.umdf.org

Social Networking Websites

Visit the following Facebook groups or pages related to Leigh syndrome:

Leigh's Syndrome Parent Network

RareConnect has an online community for patients and families with this condition so they can connect with others and share their experiences living with a rare disease. The project is a joint collaboration between EURORDIS (European Rare Disease Organisation) and NORD (National Organization for Rare Disorders).