APERT SYNDROME SUPPORT GROUPS

Apert Syndrome Support Group

314-965-3356

http://www.dailystrength.org/c/Apert-Syndrome/support-group

8708 Kathy
St. Louis, MO 63126

The Apert Syndrome Support Group (ASSG) is a voluntary, non-profit, self-help organization dedicated to providing information and support to families of children with Apert syndrome. Apert syndrome is a rare genetic disorder characterized by premature closure of the fibrous joints between certain bones of the skull, fusion or webbing of the fingers and/or toes, and unusual facial features. The Apert Syndrome Support Group enables affected families to exchange information, support, and resources through its networking program.