Parents Share - Chronic Lung Disease

Y.P., Israel, writes:

One of our daughters was a 29 week preemie. That, coupled with the low tone from PWS, has made for a long, difficult journey with low oxygen saturation, frequent pneumonias, and hospitalizations. Gradually her condition has improved but she still uses oxygen when she is sick. She has had frequent sleep studies, taken many medications, and at various times been oxygen dependent 24/7.