NEUROFIBROMATOSIS ORGANIZATIONS
The Children’s Tumor Foundation
Tel: 800-323-7938, 212-344-6633
Fax: 212-747-0004
95 Pine St
16th floor
New York, NY 10005
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Helping patients and families affected by NF1, NF2 and Schwannomatosis
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Sponsors scientific research aimed at finding the causes and cures for neurofibromatosis, promotes the development of clinical activities, works to create public awareness and provides patient support services
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A member of the International Neurofibromatosis Association
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Website has listing of multidisciplinary NF clinics across the US
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Publishes newsletter “Neurofibromatosis News” 4 times a year
National Neurofibromatosis Foundation
800-323-7938
Neurofibromatosis Inc
800-942-6825, 301-918-4600
9320 Annapolis Rd
Suite 300
Lanham, MD 20706-3123
www.nfinc.org