GAUCHER DISEASE ORGANIZATIONS
National Gaucher Foundation
800-428-2437, 301-816-1515
5410 Edson Lane
Suite 260
Rockville, MD 20852-3130
New York Office:
1200 51st Street
Brooklyn, New York
718-669-4103
National Gaucher Disease CARE Program
301-900-1053
CARE is a project of the National Gaucher Foundation which offers assistance for Gaucher patients undergoing extraordinary financial hardship who are US citizens residing in the USA. They help fund medical, dental, and vision insurance premiums and eligible expenses not covered by insurance such as:
- Travel expenses to and from a doctor’s office or hospital for ERT ($100/month maximum)
- Over-the-counter medications prescribed for Gaucher disease ($100/month maximum)
- Travel expenses for one evaluation per year from a Gaucher specialist
- Therapies prescribed for Gaucher disease that are not covered by insurance, such as acupuncture, massage therapy and yoga ($500/month maximum)
- Emergency Services/Misc. Services such as burial costs, utility reconnect and other expenses as defined and approved by the CARE Advisory Board. Most Eligible expenses are a once per year benefit.
Israeli Association For Goucher’s Disease
Assistance and support for patients dealing with Gaucher’s disease. They publish the "Gouchiton" magazine, available to members or online. To view the magazine online, click here