Fragile-X - Websites and Support Groups

 

The National Fragile-X Foudnation

http://www.nfxf.org/html/home.shtml

From their website:

The National Fragile X Foundation unites the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for Fragile X. ..

  • Local: 925-938-9300
  • Toll-free: 800-688-8765
  • Fax: 925-938-9315

FRAXA Research Foundation

http://www.fraxa.org/default.aspx

From their website:

FRAXA's mission is to accelerate progress toward effective treatments and ultimately a cure for Fragile X, by directly funding the most promising research.

FRAXA also supports families affected by Fragile X and raises awareness of this important but virtually unknown disease...

FRAXA Research Foundation
45 Pleasant St.
Newburyport, MA 01950,

Phone: (978) 462-1866
Fax: (978) 463-9985

This email address is being protected from spambots. You need JavaScript enabled to view it.

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A parent shares:
There is also a listserve from Emory University