CEREBRAL PALSY
Danielle’s Foundation
Danielle’s Foundation offers a library of comprehensive informational guides on a variety of topics to help educate and empower families to make the most informed decisions for their child with cerebral palsy or brain injury. All of the guides are provided FREE and can be emailed as a PDF for easy viewing online.
To request a copy of any of their FREE informational guides listed below, call 1-800-511-2283!
“National Guide To Resources”
This comprehensive guide contains a listing of national resources for families of children with cerebral palsy or brain injury. It includes contact information on a wide variety of national organizations, providers and support services to assist you in finding the help you need.
This FREE guide can be emailed as a PDF for easy viewing online.
“Getting the Therapy, Benefits, and Resources Your Child Needs: A Guide for Parents of Children with Cerebral Palsy and Brain Injury”
This book is a comprehensive guide that examines all of the issues and challenges that arise or may one day arise while raising your child. It is designed to give parents the information they need, as well as the support they want.
Topics covered in this book:
* Navigating the insurance system
* Understanding insurance policies
* Appealing insurance denials
* Knowing your rights
* Your child’s diagnosis and prognosis
* Traditional and alternative treatments for your child
* Special Education
* Estate Planning
This book is a must read for families who are constantly trying to resolve the complicated issues, challenges, and questions that arise. By encouraging, educating and empowering families of children with brain injury and cerebral palsy, it is our hope that this book will help them gain the knowledge and power they need to successfully advocate for their children.
“A Guide to Tube Feeding Your Child With Cerebral Palsy”
Offers information on things parents should consider before making the decision to tube feed their child. Also contains an overview of the types of feeding tubes, ways feedings are administered and possible complications.
“Cerebral Palsy: 10 Questions Frequently Asked by Parents, Family Members
and Other Loved Ones”
Provides answers to some of the most common questions you may have, or have been asked about your child’s cerebral palsy.
“A Guide to Alternative Therapies and Treatments”
Highlights therapies and treatments that are commonly pursued for children with cerebral palsy and brain injury. The guide also includes strategies to try to get these therapies and treatments covered by insurance.
“Fundraising Success for Families of Children with Cerebral Palsy
and Brain Injury”
Offers information on how to secure the funds to get your child the care and benefits he or she needs. This guide offers great tips and ideas on how you can successfully raise money yourself and become one step closer to getting the care your child needs.
“Guide to iPad Apps and Resources”
Offers a listing of helpful iPad apps and adaptive accessories for children with special needs along with information about potential national and state resources to acquire an iPad or funding for an iPad.
“Assistive Technology and Your Child”
Describes the different categories of assistive technology and explains how each category serves different needs and functions for a child with special needs. The guide also contains information on your child’s rights regarding access to assistive technology, funding options and managing insurance denials for assistive technology
“Guide to Wheelchair Accessible Vehicles”
Offers a listing of online resources for new and used vans, manufacturer rebate programs, information about ramp and lift systems and potential funding sources to help families secure an accessible vehicle.
“Special Education and Your Child”
This report is designed to educate parents of children with special needs on their rights under laws such as the Individuals with Disabilities Education Act (IDEA), the Rehabilitation Act of 1973 and the American with Disabilities Act (ADA).
“Estate Planning for Families of Children with Cerebral Palsy and Brain Injury”
Aims to give you a basic understanding of the factors you’ll need to consider during the estate planning process. By the end of this report, you’ll have all the knowledge you need to take the steps to ensure your child’s financial, medical and emotional future.
“Guardianship and Your Child”
It’s important that parents of children with cerebral palsy, brain injury or other special needs consider guardianship during the estate planning process. Our guide aims to give you a basic understanding of the factors you’ll need to consider when planning for the guardianship of your child.
“Special Needs Trusts and Your Child”
This guide provides families with information to ensure their child gets the care he or she needs, has the funds to enjoy positive life experiences, and also retains necessary government benefits.
“Health Insurance Denials and Your Child”
Provides the information parents of special needs children need to better navigate the world of health insurance. This guide helps them understand the steps they need to take to increase the odds that insurance denials will be reversed.
“The Americans with Disabilities Act (ADA) and Your Child”
The Americans with Disabilities Act (ADA) was signed into law in 1990 for the purpose of prohibiting discrimination on the basis of disability and also to make American society more accessible to people with disabilities. Our information guide examines the rights children with disabilities and their parents have under the ADA.
“The Impact of Health Care Reform on Children with Cerebral Palsy or
Brain Injury: What Every Parent Must Know”
A special report that outlines the new health care reform provisions that will positively impact children with cerebral palsy or brain injury. Some of these provisions have already gone into effect, while others are scheduled to go into effect in 2014.
“Supplemental Security Income (SSI) and Your Child”
Supplemental Security Income (SSI) is a Federal income supplement program designed to help people with disabilities who have little or no income. This guide aims to help you better understand the eligibility requirements and the general application process for SSI.