Events Calendar
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Hunters Hope Leukodystrophy Symposium
Location Holiday Valley Resort Ellicottville, New York
Contact: https://www.huntershope.org/family-care/symposium/2023-family-symposium/
The Hunter’s Hope Medical and Family Symposium is a time for Leukodystrophy families, medical providers, newborn screening lab personnel, industry partners, and researchers from around the world to gather for learning, sharing, and Hope. Registration requested.
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01:00pm Seeing With A Grateful Heart
Meet Lindsay Kerr, who is an incredible TSVI and is part of an advocacy group that works to ensure students have the assistance they need and the assistive technology (AT) which will allow them to effectively complete their educational goals. Join us as Lindsay shares her life journey as someone who has cerebral palsy and is legally blind who enjoys training students with low vision. Lindsay will also share about Eve her guide dog and the adventures they have shared together. Registration requested.