We are an international, non-profit organization, run by parents of
children with special needs, which is dedicated to helping other
parents in similar situations. We believe that each of us has become a
mini-library of crucial information and tidbits over time, and our main
goal, therefore, is to pool together all our resources and provide a
means for parents to share their experiences with each other.
We are aiming to achieve our goal through various means.
First and foremost, we try and connect parents dealing with similar
diagnoses with each other. It can be a syndrome, a condition, disease
or disability – all you need to do is call, tell us the basic info, and
we will try and find another parent who is dealing with a similar
condition and provide you with their contact information. Our
experience has shown that nothing can compare to seeing and talking to
another person going through the same route. Many parents have reported
that that was the turning point in accepting the condition and
understanding what it is all about.
Many parents grapple with a condition/disease that is rare, and find
that information is hard to come by. At Beineinu, we have student
volunteers who will do internet research for people with little or no
internet access, or who cannot conduct this search on their own for any
reason. Our volunteers try to present the information in a clear and
organized fashion. In cases where useful information can only be found
in English (as is too often the case), Beineinu volunteers will
translate that information into Hebrew. If you need information
translated into any other language – please ask us, and we can try to
see if we can arrange that for you.
Another exciting project we are working on now is our online
information-sharing feature. Once it is ready, parents will be able to
share information with others by commenting and adding to the various
lists. There will be lists of doctors, clinics, methods of treatments,
equipment, organizations, funding resources and more – where you can
post those you have used as well as comment on each one. There is no
more powerful tool than being able to check out what other parents have
used and recommend, helpful tips that parents share with you, and
useful information gathered – not from some dry phonebook, but from
parents like you who have tried and experienced these options.
Beineinu was founded by parents like you, who have found that
meeting other parents in the same situation was the best thing that
could have happened to them. The idea hatched sometime in middle of the
night: to create a list of parents who are willing to share their
experiences and talk to other parents, and to provide a small,
home-based service where people can call and request to speak with
others in the same situation. The idea seemed simple enough, and by the
end of the first month, our list included hundreds of volunteer parents
who were thrilled with the idea and happy to participate. In addition,
we began receiving calls from parents who wished to be put in contact
with others. Thus began "Beineinu".
Very quickly, Beineinu developed into a group of dedicated
volunteers who are, until this day, working tirelessly to develop and
bring all our plans to fruition. With G-d's help, Beineinu is now a
full-fledged organization which far surpassed all original dreams, and
merited to help many thankful parents. We are happy for every parent
who feels they have gained much-needed support through Beineinu. We
have many more plans for the future, as this organization slowly but
surely evolves into an international parent association.
There are many ways through which you can help Beineinu continue in
its sacred work. Every parent of a child with special needs has that
special urge to assist others and make it easier for them to walk along
this unfamiliar path, but time and resources may be limited. At
Beineinu, everyone can find the best options through which they, too,
Agree to allow other, "new" parents, to contact you through Beineinu.
Our surveys are our means of collecting important information about
doctors, organizations, and equipment that you have used, etc - that
you have used, so that we can include that in our online database.
Help us with our online research, data entry, translating, and
preparing information about conditions in a clear and
easy-to-understand fashion following the guidelines we will provide,
Since we are a volunteer organization, Beineinu's expenses
relatively minor. Since we have no government funding, we rely heavily
on people's generosity in order to be able and continue. A few hundred
dollars can translate into new printing material which can then let
more parents know about and benefit from Beineinu; your donation can
help provide reassuring care packages for new mothers who have just
received a diagnosis; it can help us add more helpful features on the
site that can then help thousands of parents like all of us. Since all
funds go to cover our actual printing, mailing, and website expenses, a
donation of any amount really makes a true difference.
Any other ideas? Tell us how YOU can help!